Care for the person with autism spectrum disorder and their family in emergency care

Authors

DOI:

https://doi.org/10.5433/1679-0367.2022v43n2p251

Keywords:

Autism spectrum disorder, Family, Nursing care, Humanization of assistance

Abstract

Nursing has as its essence caring and acts as the front line of health care in most services. Thus, these professionals are faced with the diversity of human health conditions, which includes the Autistic Spectrum Disorder (ASD). This article has as objective to analyze the performance of nurses towards people with autism, as well as their families in the Emergency Care Units through a descriptive research with a qualitative approach carried out through semi-structured and audio-recorded interviews, transcribed in full and analyzed using the method of analysis thematic category. Eleven nurses working in the Emergency Care Units belonging to a municipality in Foz do Rio Itajaí (Santa Catarina) participated in the research. Through the speech of the interviewed professionals, it was evident that there is some knowledge about the disorder on the part of nurses, but in a limited way. It is clear the needing for the role of the family as a link between the patient and health professionals and the provision of humanized care to these patients. Thus, the importance of a greater approach to the ASD in the academic and continuing education of these professionals is highlighted, aiming at providing quality care and that is in accordance with accordance with the subject’s particularities.

Author Biographies

Juliana Vieira de Araújo Sandri, Universidade do Vale do Itajaí - Univali

PhD in Nursing from the Universidade Federal de Santa Catarina (UFSC), Florianópolis, Santa Catarina, Brazil. Full Professor of the Nursing Course at the Universidade do Vale do Itajaí (Univali), Itajaí, Santa Catarina

Isabela Antonio Pereira, Universidade do Vale do Itajaí - Univali

Nursing student at the University of Vale do Itajaí, Itajaí, Santa Catarina.

Thays Gabriela Lemes Pereira Corrêa, Universidade do Vale do Itajaí - Univali

Graduation in Nursing from the University of Vale do Itajaí, Itajaí, Santa Catarina

References

Araújo JAMR, Veras AB, Varella AAB. Brief considerations regarding the attention to in-dividuals with autism spectrum disorder in the public health system. Rev Psicol Saúde. 2019;11(1):89-98. doi: 10.20435/pssa.v10i2. 687.

Brasil. Lei 13.977 de 8 de janeiro de 2020. Altera a Lei nº 12.764, de 27 de dezembro de 2012 (Lei Berenice Piana), e a Lei nº 9.265, de 12 de fevereiro de 1996, para instituir a Carteira de Identificação da Pessoa com Trans-torno do Espectro Autista (Ciptea), e dá outras providências [Internet]. 2020 [citado 2021 nov 18]. Disponível em: http://www.planalto.gov.br/ccivil_03/_ato2019-2022/2020/lei/L13977.htm

Campos TS, Arboit EL, Mistura C, Thum C, Arboit J, Camponogara S. User embracement and risk classification: health professionals’ and users’ perceptions. Rev Bras Prom Saúde [Internet]. 2020 [cited 2021 oct 26];33:9786. Available from: https://periodicos.unifor.br/RBPS/article/view/9786

Ferreira ACSS, Franzoi, MAH. Knowledge of nursing students about autistic disorders. Rev Enferm. UFPE on line [Internet]. 2019 [cited 2021 oct 26];13(1):51-60. Available from: https://pesquisa.bvsalud.org/portal/resource/pt/biblio-1006011

Hofzmann RR, Perondi M, Menegaz J, Lopes, SGR, Borges DS. The experience of famil-iars in the coexistence of children with autis¬tic spectrum disorder (asd) Enferm Foco [In-ternet]. 2019 [cited 2021 oct 27];10(2):64-9. Avaliable from: http://revista.cofen.gov.br/index.php/enfermagem/article/view/1671/521

Magalhães JM, Lima FSV, Rodrigues ABM, Silva FRO, Gomes AV. Nursing care to the autistic child: an integrative review. Enferm Global. 2020;19(2):541-50. doi: 10.618/eglobal. 356741.

Mapelli LD, Barbieri MC, Castro GVDZB, Bonelli MA, Wernet M, Dupas G, et al. Child with autistic spectrum disorder: care from the Family. Esc Ana Nery. 2018;22(4). doi: 10.1590/2177-9465-EAN-2018-0116.

Marcolino LCM, Carvalho MRCT, Filho GHCV, Pereira MSMG, Queiroz RMM, Marcolino ABL. Reflections on violence re-lated to people with autism spectrum disorder. Braz J Hea Rev. 2020;3(5): 11674-84. doi: 10.34119/bjhrv3n5-025.

Ministério da Saúde - MS (BR). Programa Arquitetônico mínimo: Unidade de Pronto Atendimento UPA-24h - versão 3.0/2.021 [In-ternet]. 2021 [citado 2021 out 18]. Disponível em: https://www.gov.br/saude/pt-br/media/pdf/2021/julho/21/programa-arquitetonico-minimo-upa-24-h-versao-3-0 2021.pdf

Ministério da Saúde (BR). Humaniza SUS: documento base para gestores e trabalhadores do SUS. 4a ed. [Internet]. 2010 [citado 2021 out 17]. Disponível em: https://bvsms.saude.gov.br/bvs/publicacoes/humanizasus_documento_gestores_trabalhadores_sus.pdf

Oliveira SN, Ramos BJ, Piazza M, Prado ML, Reibnitz KS, Souza AC. Emergency care units (UPA) 24h: the nurses’ perception. Texto Contexto Enferm. 2015;24:238-44. doi: 10.1590/0104-07072015003390011.

Organização Pan-Americana de Saúde - OPAS. Folha informativa: transtorno do espectro au¬tista [Internet]. 2017 [citado 2021 out 26]. Dis¬ponível em: https://www.paho.org/bra/index.php?Itemid=1098

Santos NK. Santos JA, Santos CP, Lima VP. Assistência de enfermagem ao paciente autista: um enfoque na humanização. Rev Saúde Dom Alberto [Internet]. 2019 [citado 2021 Out 26]; 4:17-29. Disponível em: http://revista.domalberto.edu.br/index.php/revistadesaudedomalberto/article/view/408/357

Sena RCF, Reinalde EM, Silva GWS, Sobreira MVS. Practice and knowledge of nurses about child autism. Rev Pesq. 2015;7(3):2707-6. doi: 10.9789/2175-5361.2015.v7i3.2707-2716.

Silveira A, Neves ET. Family care of chil¬dren with special healtcare needs: a process of (super)natural care and (over)protection. Tex Contex Enferm. 2013;22(4):1106-14. doi: 10.1590/S0104-07072013000400029.

Soeltl SB, Fernandes IC, Camilo SO. O conhecimento da equipe de enfermagem acer-ca do transtorno do espectro autista à luz da teoria do cuidado humano. ABCS Health Sci. 2021;46. doi: 10.7322/abcshs.2019101.1360.

Viana ALO, Silva AB, Lima KBB, Souza MV, Borges VGR. Complementary practices to child autistic spectrum disorder: integrative literature review. Enferm Foco [Internet]. 2020 [cited 2021 oct 26]:11(6):48-56. Available from: http://revista.cofen.gov.br/index.php/enfermagem/article/view/3258

Volkmar FR, Wiesner LA. Autismo: guia es¬sencial para compreensão e tratamento. Porto Alegre: Artmed; 2019.

Weissheimer G, Mazza VA, Santana, JM, Ruthes VBTN, Freitas CASL. Information demands from families of children with Au¬tism Spectrum Disorder. Rev Bras Enferm. 2021;74(5). doi: 10.1590/0034-7167-2020-0642.

Published

2022-11-11

How to Cite

1.
Sandri JV de A, Pereira IA, Corrêa TGLP. Care for the person with autism spectrum disorder and their family in emergency care. Semin. Cienc. Biol. Saude [Internet]. 2022 Nov. 11 [cited 2024 Jul. 8];43(2):251-62. Available from: https://ojs.uel.br/revistas/uel/index.php/seminabio/article/view/46202

Issue

Section

Artigos